Keeping patients at the heart of our Rosalind Study to advance Cancer research is at the core of our mission.
Recently, we had the privilege of welcoming Steven Merlin, a stage 4 pancreatic Cancer survivor and renowned Cancer patient advocate, to our Paris headquarters.
A Remarkable Survivor and Advocate
Steve travelled all the way from the USA to share his inspiring journey with our team. Diagnosed over 14 years ago, he has survived pancreatic Cancer against the odds. As a researcher at Weill Cornell Medicine, Steve has also brought his scientific expertise to the forefront of patient advocacy. Steve was able to engage with our scientists on a rare level, blending personal experience with clinical insights as a leading Cancer patient advocate.
Bridging Science and Patient Experience
Steve’s involvement in the oncology community is extensive and impactful. His roles include:
Research Patient Advocate, American Society of Clinical Oncology (ASCO)
Survivor Council Member, Pancreatic Cancer Action Network (PanCAN)
Patient Advisory Board Member, Let’s Win Pancreatic Cancer
Research Patient Advocate, ECOG-ACRIN Cancer Research Group
Facilitator of Patient Support Groups, Seena Magowitz Foundation
Through these positions, Steve contributes to shaping research priorities, ensuring clinical trials are patient-centered and supporting fellow patients navigating their Cancer journeys. His experience as a Cancer patient advocate helps bridge the gap between scientists and patients, ensuring research reflects real-world needs.
Strengthening Our Research Approach
Collaboration with Cancer patient advocates like Steve is essential. His expertise, network and authenticity enhance our scientific approach, helping design research that is both innovative and aligned with patient needs. By integrating patient insights with rigorous scientific methods, we aim to accelerate breakthroughs in pancreatic Cancer treatment.
Why Patient Advocacy Matters
Cancer patient advocates play a crucial role in oncology research and in our Rosalind Study:
Cancer patient advocates provide unique perspectives that guide clinical trial design
Cancer patient advocates ensure patient experiences inform treatment strategies
Cancer patient advocates help researchers connect with the broader patient community
Working hand in hand with Cancer patient advocates ensures that scientific progress translates into meaningful outcomes for patients worldwide.
Engaging with leaders like Steve Merlin reinforces our belief that patients are our partners in reshaping the future of oncology and Cancer care.
Updated: March 19, 2026
