In a recent article, Dr. Deb Schrag highlights the approach that patients are experts in their own experience.
When patients are actively involved:
Care decisions better reflect real-life priorities, beyond clinical assumptions
Early, subtle signals come into focus
Care becomes more precise and more impactful
Patient perspective is the driving force behind our Rosalind Study.
Our Patients’ Committee, led by pancreatic cancer exceptional survivor Yann Bizien, helps ensure lived experience directly informs scientific exploration. The committee brings together patients from around the world to share experiences, feedback and observations that can help uncover insights often invisible in traditional datasets.
Our patients’ committee is building a global network of patient advocates working alongside oncologists, researchers and cancer centers. Members participate in scientific conferences, foster collaborations and help elevate the voices of exceptional survivors in public and medical conversations.
We believe advancing cancer research is about listening more carefully to the people living through the disease. Until all survive.
Updated: June 8, 2026
